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The aim of the society is to foster the study of inherited metabolic disorders and related topics.

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ABOUT SSIEM

Aims of the Society

The aim of the Society is to foster the study of inherited metabolic disorders and related topics. The Society, founded in 1963, exists to promote exchange of ideas between professional workers in different disciplines who are interested in inherited metabolic disease. Pursuing this aim by arranging scientific meetings, publications and in other ways considered appropriate by the Council. The Council is also supported by advisory council members who provide advice and meet with the Council at the annual symposium.

The Society, a registered charity, accepts donations from sponsors sympathetic to its aims. The Council, within its financial resources, is willing to spread interest and study in inborn errors around the world by selectively supporting membership and attendance at conferences from areas of the world where financial resources are more limited. Not funding research, but offering on request, advice to other organisations who do. The Society is also a limited company and the liability of members in the event that the Society is wound up is limited to £1 per member.

 

History of the SSIEM

The origins of the SSIEM may be traced to an informal meeting held in England at the Manchester Royal Infirmary in 1962 when an enthusiastic group of biochemists and paediatricians met to discuss phenylketonuria. In May of the following year, the same group held a symposium in Sheffield which was entitled "Neurometabolic disorders in childhood". The Society was constituted formally in October 1963. The first symposium organised by the newly formed SSIEM was held in Liverpool in 1964 on the subject of "Biochemical approaches to mental handicap in children".

The history of the SSIEM is one of steady development. In 1967 the first corresponding members were appointed to provide communications with the wider membership. The first symposium to be held overseas was at Zurich in 1968.

Perhaps the most tangible achievement of the SSIEM has been its publication. Every one of its symposia has been published and this has provided invaluable review on specific topics in the field of inborn errors of metabolism. In 1978 the Journal of Inherited Metabolic Disease (JIMD) was launched. Membership now stands at over 1400 and is truly international with members from over 75 different countries.

In 2007, the Society established the Education and Training Advisory Committee to monitor the clinical training in paediatric metabolic medicine on behalf of the European Academy of Paediatrics and to organise the SSIEM Academy courses for paediatricians and laboratory scientists training in inherited metabolic medicine. The scientific component of the Academy course is organised in conjunction with ERNDIM.

In 2010, the Society established two special interest groups, for metabolic dieticians and for clinicians with an interest in IEMs presenting in adults. These special interest groups organise meetings within the annual Symposium and communicate information of interest. Membership of these groups is open to all members of the Society.

 

Journal of Inherited Metabolic Disorders (JIMD)

Perhaps the most tangible achievement of the SSIEM has been its publication. Every one of its symposia has been published and this has provided invaluable review on specific topics in the field of inborn errors of metabolism. In 1978 the Journal of Inherited Metabolic Disease (JIMD) was launched. Membership now stands at over 1250 and is truly international with members from over 75 different countries.

It publishes original work, in the form of papers, short reports and case reports, covering all aspects of inherited metabolic disorders in man and higher animals: clinical, biochemical, genetic, experimental, epidemiological and ethical.

The Society publishes six to eight issues of the Journal of Inherited Metabolic Disease each year (JIMD). This publication is supplied free of charge to paid up members.

Some of the issues are used to publish selected papers from the annual scientific meeting and symposium.

Confidentiality

Confidentiality of data relating to individual patients and visitors to the SSIEM Web site, including their identity, is respected by this Web site. The Web site owners undertake to honour or exceed the legal requirements of medical/health information privacy that apply in the country and state where the Web site and mirror sites are located.

Charity

Registered Charity No. 1010639

Limited Company

Registered Company No. 2567711