Excellence in Pediatrics Institute (EIP)
https://eip-pediatrics-community.ineip.org/live_webinars_metachromatic_leukodystrophy_mld
The Excellence in Pediatrics Institute have developed 4 webinars in their latest Spot the Early Signs Series cover the basics of MLD, practical neurological case studies that offer the opportunity to connect the theory with the practice and treatment options.
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- European Porphyria Network
- Le Comité d'Evaluation du Traitement des maladies Lysosomales (CETL)
- Recordati Rare Diseases Foundation Courses
- BIMDG ProtocolsProtocols for the management of a variety of inborn errors of metabolism, published by the British Inherited Metabolic Diseases Group.
- Société francaise pour l'étude des erreurs innées du métabolisme
- The Drug Database for Acute Porphyria
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- ESPKUThe European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (or E.S.PKU) is the umbrella organisation of about 23 national and regional associations from 23 countries established by parents.
- GMDIThe mission of GMDI is to provide standards of excellence and leadership in nutrition therapy for genetic metabolic disorders through clinical practice, education, advocacy, and research.
- MetabERNthe European Reference Network for Hereditary Metabolic Disorders.
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